Thursday, August 5, 2010

Arthrogryposis Multiplex Congenita Convention Celebrates 5 Years


The AMCSI Support Group Inc. celebrated a very special occasion. And where else would better suite celebrating 5 years of success? None other than Walt Disney World's Grand Floridian Hotel.

For 5 years the AMCSI Support Group has been gathering at an annual convention, to celebrate & acknowledge those living with and caring for those with Arthrogryposis. As most of you know, I was born with it. AMC occurs 1 in every 3,000 births. The goal of AMSCI is to be used as a tool to provide information and a better understanding among anyone affected with AMC.

This year I was blessed enough with the opportunity to be the keynote speaker. I can honestly say, that I'm sure I learned more from those in attendance than they could have ever learned from me. I was really touched because in my 30 years of life, I have never been around so many people who are just like me. It was so great to see so many little ones, teens and even adults, sharing their stories and passing information and advice on life with AMC. It was also really cool to meet the women who make this annual event possible: Ani Samargian (founder), Theresa Lucas, Jennifer Keeton, Marybeth Eberhard, just to name a few.

Celebrating 5 at WDW was definitely an added bonus. We were all able to experience the magic of Disney with our family and eachother. I had a blast with the Heckert Family at Hollywood Studios. Having dinner with Mikaela & Melanie will always be one of many favorite memories.

I encourage everyone to check out AMCSI at www.amcsi.org - whether you have AMC or not. These people will forever change your life. Thank you AMCSI for having me as your speaker and for allowing me to be a part of your family.

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